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Accepting the Unacceptable



I am a special needs parent and I accept that my child has a disability.

I hate that fact that this is our reality.
I don't like to spend my days in therapies, doctor appointments or constantly researching about my child's disability.
I hate telling people that my child is different my heart aches every time.
I hate thinking about my child's future because I know that I can never die.
I hate knowing that my child will probably never have a "typical life" whatever this means.
I hate having to explain my child's disability to people over and over again.
When you have a typical child you don't walk around explaining your child’s  behaviors to people.
I hate it all.
I could probably go on and on about all the things I hate about my child having a disability. 

But.

I accept it. 

I accept the Unacceptable.

You don't have to be OK with the difficult things that come with your child's disability. 
You can hate the fact that your child can't do this or that.
But please don't get stuck there.
As a special needs parent you are allowed to hate it all.
We do have to learn to accept the Unacceptable.
The only way we can help our child is to accept their unique world.
We have to embrace all their differences.
Learn to love their world.
Join their world so they can come to ours.
We have to be willing to change the world for our child.

Today and everyday.

I accept you Autism.

I accept you Epilepsy.

I accept you Fragile X Syndrome.

You are Unacceptable because you make it so hard for me to connect with my child, but you also make him unique.

You have taught me to love all the differences, and to never take the little things for granted. 

You have taught me that consistency is key.

You have taught me to celebrate every milestone no matter how small.

You have taught me that different is not less.

You have taught me that is okay not to fit in when you were born to stand out.

You have taught me to see the able not the label.

You have taught me patience.

You have taught me to see the world from a different angle.

Most of all you have taught me that love needs no words.



So today and everyday I accept it all. Yes is Unacceptable.It's difficult and is not fair. We don't know why were chosen to live this way, but maybe just maybe we were chosen so we can change the world one piece at a time.